More to come later :)
Showing posts with label KAFO. Show all posts
Showing posts with label KAFO. Show all posts
Monday, August 15, 2011
Wednesday, August 10, 2011
15 Months!
Miss Kaitlyn had her 15 month check up today and all is well. She did not cry once during or after her shot today! I was shocked, but I really think she was to tired, she was asleep before we hit the first red light home. We've been working on getting her to eat more, as at her last appointment she had dropped off the charts, not good, but since then she's plumped up a little. :)
Stats for today:
8/10/11 - 15 months
Weight: 19 lbs
Height: 29.5 inches
Head: 45 cm
Overall she's doing well, we are still doing PT a couple times a month, and I can tell a huge difference in the things she can do now. She's pulling up more, standing longer, pushing toys across the room easier and propelling forward on her riding toys. She's also learned to climb real well lol but it's all good because it is helping her hips to loosen up. The ped, mentioned he wanted to refer her to see an Ortho DR, but I told him we were already scheduled to see on in Oct, so we'll just wait til then.
We are still waiting on her braces, they were supposed to be in last week but they weren't, so hopefully next week. I am anxious to get them and see how she will do with them. I know they will hinder her some in the aspects of how she currently moves and most likely will frustrate her, but I am looking forward to the positives from them.
Previous Stats:
8/20/10-2 month check up (she's 3.5 months at this visit)
Weight 11 lbs, 12 oz
Height: 23.5 inches long
Head: 40.5 cm
10/1/10-4 month check up (she's almost 5 months at this visit)
Weight 13 lbs, 4 oz
Height: 24 inches
Head: 41.5 cm
12/9/10 - 7 month check up (7 months old)
Weight: 15lbs 3oz
Height: 25.75 inches
Head: 42.5 cm
2/22/11- 9 month check up
Weight: 16lbs 9ozs
Height: 26.5 inches
Head: 43.5 cm
5/10/11- 12 month check up
Weight: 16 lbs, 5 oz
Height: 28 inches long
Head: 44 cm
8/10/11 - 15 months
Weight: 19 lbs
Height: 29.5 inches
Head: 45 cm
Quick 15 Month Picture
Stats for today:
8/10/11 - 15 months
Weight: 19 lbs
Height: 29.5 inches
Head: 45 cm
Overall she's doing well, we are still doing PT a couple times a month, and I can tell a huge difference in the things she can do now. She's pulling up more, standing longer, pushing toys across the room easier and propelling forward on her riding toys. She's also learned to climb real well lol but it's all good because it is helping her hips to loosen up. The ped, mentioned he wanted to refer her to see an Ortho DR, but I told him we were already scheduled to see on in Oct, so we'll just wait til then.
We are still waiting on her braces, they were supposed to be in last week but they weren't, so hopefully next week. I am anxious to get them and see how she will do with them. I know they will hinder her some in the aspects of how she currently moves and most likely will frustrate her, but I am looking forward to the positives from them.
Previous Stats:
8/20/10-2 month check up (she's 3.5 months at this visit)
Weight 11 lbs, 12 oz
Height: 23.5 inches long
Head: 40.5 cm
10/1/10-4 month check up (she's almost 5 months at this visit)
Weight 13 lbs, 4 oz
Height: 24 inches
Head: 41.5 cm
12/9/10 - 7 month check up (7 months old)
Weight: 15lbs 3oz
Height: 25.75 inches
Head: 42.5 cm
2/22/11- 9 month check up
Weight: 16lbs 9ozs
Height: 26.5 inches
Head: 43.5 cm
5/10/11- 12 month check up
Weight: 16 lbs, 5 oz
Height: 28 inches long
Head: 44 cm
8/10/11 - 15 months
Weight: 19 lbs
Height: 29.5 inches
Head: 45 cm
Quick 15 Month Picture
Don't mind my husbands head cut off ;) wasn't on purpose lol
So that's about it for now, will update more once we get the braces in.
Wednesday, July 13, 2011
Braces
And I don't mean the kind for your teeth. We are about to enter the world of AFOs and KAFOs and I am just trying to go with the flow. Kaitlyn is now 14 months and at our last neuro appt I mentioned to them again about her weak ankles and not being able to stand for long periods of time without them giving out and or walking on the side. They gave us a "script" for physical therapy and told us we could use any PT in our area. So I talked to some friends and we called Early Intervention to see if we would qualify. Of course their response was that because of the SB she automatically qualified for free services.
If our ped had listened to me months ago, we could have already gotten this show on the road and she could possibly be walking. I am soooo MAD. That's a story for another day.
So we had our initial appt, then our 1st PT appt this past Monday. She watched her play, stand up etc and determined she would need braces. She will get 1 for each leg. Her right foot, the least affected will get a AFO and her left one, will get a KAFO ( I think....) on the site she gave me, it really doesn't connect to the knee, but it has a piece that comes up the back/sides to help her from hyper-extending her knee apparently.
She did say that she didn't think she would need any other type of assist devices and she may not always need the braces but for now until her muscles strengthened she would. We are doing PT for the next 3 weeks and then in Aug, once a month. They showed us some stretches to do with her and also correct her "W" sitting as she does quite often.
Our PT will be back on Mon, to measure her for her braces. I am kinda sad but I am glad we have an answer and a plan. We go back to UAB in Oct for a clinic day (first one) and see 4 drs, plus she'll have her renal ultrasound recheck and a urodynamics as well.
Just wanted to update, since it's been awhile. She's doing amazingly well outside of the not walking and honestly I wasn't worried if she would be a late walker, but worried about her ankle/leg weakness. I am very irritated our ped wouldn't listen and he'll get an ear full from me soon.
If our ped had listened to me months ago, we could have already gotten this show on the road and she could possibly be walking. I am soooo MAD. That's a story for another day. So we had our initial appt, then our 1st PT appt this past Monday. She watched her play, stand up etc and determined she would need braces. She will get 1 for each leg. Her right foot, the least affected will get a AFO and her left one, will get a KAFO ( I think....) on the site she gave me, it really doesn't connect to the knee, but it has a piece that comes up the back/sides to help her from hyper-extending her knee apparently.
She did say that she didn't think she would need any other type of assist devices and she may not always need the braces but for now until her muscles strengthened she would. We are doing PT for the next 3 weeks and then in Aug, once a month. They showed us some stretches to do with her and also correct her "W" sitting as she does quite often.
Our PT will be back on Mon, to measure her for her braces. I am kinda sad but I am glad we have an answer and a plan. We go back to UAB in Oct for a clinic day (first one) and see 4 drs, plus she'll have her renal ultrasound recheck and a urodynamics as well.
Just wanted to update, since it's been awhile. She's doing amazingly well outside of the not walking and honestly I wasn't worried if she would be a late walker, but worried about her ankle/leg weakness. I am very irritated our ped wouldn't listen and he'll get an ear full from me soon.
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