Wed May 12, 2010
So tomorrow we have a follow up appointment with our regular pediatrician and they will get the referral for the other doctors. We have two places to choose from, UAB and Vanderbilt, I've heard good ab out both but want to do my research and figure out which we should choose. The surgery will also not be done until she is a little older, my guess is around the 2 to 4 month stage, but that's just based on what I've read online. They want her to get stronger and bigger before doing the surgery and since hers is closed it's not a have to be done immediately surgery. Though I prefer it to be sooner than to much later as I don't want it to affect her everyday life.
Thank you to everyone who said prayers and kept us in their thoughts during this rough time in our lives and please continue to think of us and baby Kaitlyn for her upcoming appointments and surgery.
The more I think about this doctor, the more mad I get. This man never came to talk to us in person, EVER. I was told by a friend he was a great surgeon but had a terrible bed side manner...well considering he never came to talk to us about a newborn that was in NICU with undiagnosed Spina Bifida, yah I think he does.
We really had a terrible experience the whole way through this ordeal. I can't even begin to describe how it feels to know nothing about your child's birth defect and to be in a different hospital than they are. It's surreal, you don't feel that it is really happening, until you don't see your baby while you're there. It's different when you come home to an empty crib and unpack the baby clothes you took to bring baby home in. It almost feels like a dream, but it's more like a nightmare that you pray is over soon. Thankfully our nightmare only lasted 5 days, but that was 5 to many.