July 8, 2010
K had surgery approx two weeks ago and sometimes I am still trying to wrap my head around that. My 6 week old baby had major spinal surgery. She could have been paralyzed, she could have major bladder/bowel issues, she could have required another surgery to put a shunt in her head. She could have been. She's not paralyzed, had a very short term bladder issue and she did not need another surgery. Miracles happen. Prayers work. Believe it.
When K was 4 days old I found a support forum for people living with Spina Bifida or parents of children with Spina Bifida: Spina Bifida Connection . This was my saving grace. The people there are inspiring, helpful, friendly and most of all been there. To be able to connect with other moms/dads who have been there and done that, to know I am not alone in this journey is priceless. Reading their stories, blogs, and helpful posts in regard to my own situation, I learned so much.
I learned that K having Spina Bifida is not the end of the world, just a different world. Her life isn't going to end or not be fulfilling because she has a birth defect. She will go on to lead a fulfilling life filled with love, joy, friends and family.
I am learning to live in the here and now and not in the future. No one can predict what will happen in the next 6 months, year or 10 years and rather than worry and dwell on it, I am living life and enjoying time with my 3 girls.